Epilepsy Alliance Europe

#EUProtects Campaign – EpiCARE European Reference Network for Rare and Complex Epilepsies

EpiCARE is a European Reference Network for rare and complex epilepsies. It connects 28 specialist centres in 13 European countries with world experts in the field of epilepsy with the aim of diagnosing and treating rare epilepsies.

EpiCARE runs regular case discussions that allow clinicians to talk through complex epilepsy cases to see if epilepsy surgery is the best solution for the patient. During case discussions patients are evaluated to determine whether a single area of the brain is causing seizures which could be removed without causing further problems, potentially curing the epilepsy.

Onni, a 4 year old Finnish boy, was referred to EpiCARE by his consultant to seek advice. Onni was diagnosed with hypothalamic hamartoma and his case was discussed during one of EpiCARE’s case discussions. He was referred to University Hospital La Timone, Marseille, France for Gamma Knife Surgery.

You can contact EpiCARE via their website: https://epi-care.eu/
You can find further information on European Reference Networks here: https://ec.europa.eu/health/ern_en